RARE STRENGTH
“More than moguls. More than mountains. This is a story of resilience, identity, and unstoppable motion.”
Welcome to Rare Strength—a space born from freestyle ski ambition and personal courage.
I’m Alexandre Wargniez, skier, advocate, and designer behind the butterfly-winged* emblem that represents not just motion—but transformation.
From France to the USA, my journey was carved through peaks and valleys
Living with Epidermolysis Bullosa (EB) means every step is calculated—but my spirit?
It’s wild
.
Where courage meets snow, and wings are earned—one run at a time.
* The butterfly symbolizes Epidermolysis Bullosa—a rare skin condition. Just like a butterfly’s wings,
our skin is fragile. My logo carries that symbol into motion, flying through moguls with rare strength.
“Help spread awareness—share this page with your community.”